Outraged writes: “My life before caring was bliss. I worked in Ireland, in the public sector and was outraged at the austerity measures being imposed on public sector workers.
I didn’t know I was born.
I moved back to the UK two years ago when my mum was diagnosed with a brain tumour. She had worked fulltime but was also a carer for my sister who has cerebral palsy. I now look after both of them as they are very physically disabled and thus very physically dependent.
The support family carers can get from the state is abysmal. It is also means-tested. I am expected to fund respite care top-ups on a carer’s allowance. Bear in mind the allowance is £61 per week regardless of how many people you care for, and tops-up range from £50-£200+ per week.
I cannot work – no employer wants someone who can’t be flexible, who has to leave work regularly or can’t stay back because of myriad hospital appointments, blocked catheters, toilet calls, or most frequently of all – to pick up the personal care tasks that care agencies won’t do…or more usually don’t do safely. I have to supervise carers, or else they would mobilise my mum unsafely -sinks are washing aids, not standing aids! -they don’t change their gloves (they don’t pay for this PPE unlike me) – I’ve stopped carers from taking stuff from my fridge because they had my sister’s faeces on their gloves; -they leave our front door ajar ALL THE TIME.
The state pays £400/week to these agencies for providing 33.25 hours of care. I get £61/week Carers Allowance for 118 hours.
The red tape is endless… disability allowance, carers allowance, personal independence payments contracts, housing benefit, means tested assessments for housing support services, care in the community services, pensions credit, support with health costs, carers leave application to my employer. These are reviewed annually.
On a daily basis I am to my carees:- * Nurse, * physio, * PA, * secretary, * social services advocate, * chef, * cleaner, * chauffeur, * personal shopper, * limb-mover,* pharmacist, * debt manager, * banker. I feel like I do so much more, I am that tired.
I’ve lost circa £100,000 in earnings in two years of caring. For this the state offers me £60/week. No pension, no sick pay, no holidays and if my carees go into hospital or respite care then I lose that £60 too.
My work and friends are in Ireland, my partner is in Ireland, my home is in Ireland but I’m here. I’m only 34, I want to have kids, I want my life back. But that will only happen when they die, and then it’ll be too late.
3 in 5 of us will be carers at some point in our lives, and that figure will likely grow as life expectancy exceeds life quality.
I say to all you non-carers who happen to be reading: enjoy your life whilst you have it, the state will not permit you a life as a carer.In fact, if it could means-test my nostalgia it probably would.“
Carer With Attitude says:
If you are altruistic and want look after those you love, and save the NHS and Social Care departments from having to pay the going hourly rate for paid care (in this case £12 for every daylight hour), should the state really expect you to give up your life, your career, your future, your family, as well?
Yet MPs (every single one of whom have failed to help the family carers they all represent) tell us they are being altruistic to live on that teeny weeny little £67k they get as basic salary (plus generous expenses to cover the costs of running an office.. staff..somewhere to live..ok several places to live.. travelling ..silk cushions.. duck houses… moats.. moles…You know how it goes) And they seem to be allowed extraordinary licence in their expenses claims. AND many get seeming immunity from prosecution, censure or dismissal when they go beyond licence to downright fraud.
Iain Duncan Smith thinks that £61 a week Carers Allowance is generous recompense for Outraged’s altruism and hard work. He also thinks £39 is a reasonable amount for himself to try and claim for a single breakfast* to line his lardy, smug and self-entitled tum. Think about that for a moment.
I wonder how many years Outraged has spent getting qualified? WIkipedia points up Duncan Smith’s qualifications as pitifully thin when the truth was told. Wouldn’t the world run better if the Ian Duncan Smith ‘learned on the job’ for a while, as fulltime carer discovering for himself the realities of working round the clock without acknowledgement or comfort whilst trying to survive on £60 a week? Thus allowing Outraged to fulfil her considerable potential through the career and life she would like to lead? Answers please!
The next Carers Virtual Strike will be on 21 November 2014.
*his claim was submitted – but, thank goodness, not accepted.